Sunday, March 16, 2014

Good Kings Bad Kings by Susan Nussbaum

This award winning book serves as an eye-opener on the care--or lack of care in most cases, of a group of teens with disabilities who are confined to a privately-run  but government-sponsored nursing home in Chicago.  The story is told through the voices of  three of the teens, two of the staff, a recruiter for the company that runs the home and wants beds to be filled, and a smart young woman, also disabled, who is hired as a data-entry clerk, a job which provides access to patient records and prompts her to ask questions.

A variety of relationships emerge from the teens' narrations.  Sad, vulnerable Mia is often stranded in her oversized and broken wheelchair.  Sometimes Teddy attaches her chair to his automated one so he can move her around.  Teddy adores Mia and watches over her until she mysteriously starts to shun him.  Yessie is also wheelchair-bound, but that doesn't stop her from taking on girls that steal from her or call her names. Orphaned and grieving but tough, fifteen-year-old Yessie finds a friend in Jimmie, one of the aides, who feels fortunate to escape from a life on the streets herself.   The other aide, Ricky, is a pretty cool Puerto Rican who cares about the kids and has a major crush on Joanne, the data-entry clerk.  Their romance and Joanne's increasing involvement in patient advocacy are high points of the book.

Ricky, Joanne and Jimmie are the "good kings."  There are, unfortunately, a number of "bad kings" who are abusive or criminally negligent as part of a system that values making money over delivering quality care.  The home, also know as the ILLC--Illinois Learning and Life-Skills Center, has a higher than expected number of hospitalizations for its clients.  There are disturbing undercurrents of  danger for the residents, who have few resources other than their own spirit and resilience and the dedication of the "good kings" to deflect the physical and psychological threats that confront them on a daily basis. The language is honest and raw and the situations are very believable. The tension comes from wondering if there will be any justice for the characters. The novel is gripping and at times tough to read, but its well worth the effort.

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